Joined May 6 2012
47 years old
I have a 5 year old (almost 6) named Ethan who has RS along with ChiariMalformation. He has Spina BifdaOcculta,, Single Kidney, 2 VSD, . He had a therefore spinal spinal cord with surgery and had the decompression on the ChiariMalformation. He has 2 eye surgeries. He has a smart witted sense of humor and keeps us on our toes. Very bright and has scored very high on his K testing.