Rhombencephalosynapsis & Gomez Lopez Hernandez

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Ben Taylor


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Joined Jan 22 2013
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MALE
38 years old
Melbourne Australia
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Rhombencephalosynapsis & Gomez Lopez Hernandez

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About Me

I was diagnosed at the age of 31 with RES, having had constant battles with balance and coordination since I was born.  I came into this world with webbed fingers and toes, a cleft pallet andsquints to both eyes.

I now know what was 'wrong' with me and hope to be able to help others to understand this rare condition.

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