Rhombencephalosynapsis & Gomez Lopez Hernandez

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Jojorun9
Member
Female
About Me
We just had twins on April 4th. We had a little girl and boy early at 35weeks. Our little girl was officially dx with RS at a 32 weeks through a MRI while I was pregnant. We were very fortunate that she did not have other issues when she was born! We are searching out other parents that have been through this to help us know what to expect.

Jonna
Member
Female
About Me

I have a son Anton, born in 2007 with RS and a daughter, Ella, without RS ;) born in 2010.



Justin
Member
Male
46 years old

Karen
Member
Female
42 years old

KariLyn
Member
Female
40 years old
About Me

My youngest son received his GLH diagnosis over six years ago when he was two. It has been really incredible to see this support grow on the internet.



Kim McCollough
Member
Female
46 years old
About Me

My son Matthew is 5 (4/25/07) and was diagnosed with RS & GLHS at 18 months.  He's an amazing little guy and just started Kindergarten this month.  He's in a main stream classroom with no aid and will receive OT & PT once a week.  We're keeping our fingers crossed that all goes well!



KristenFescoe
Member
Female
41 years old
About Me

Mom of twin girls and a baby boy. One of my twins was diagnosed with RS in 2009. Life has been crazy every day since but I wouldn't change it for anything!



Lachlans Mom
Member
Female
46 years old
About Me




Leanne
Member
Female
About Me


Liselot
Member
Female
38 years old
About Me




MRose
Member
Female

Margaret Lee
Administrator
Female
70 years old
About Me




Maria Scantlebury
Member
Female
31 years old
About Me
I'm 25 from the south west of the UK. My partner and I have a beautiful boy called Charlie :)

Marianna
Member
Female
41 years old

Marie
Member
Female
About Me

I am a paediatric physiotherapist and interested in learning more about rhombencephalosynapsis & Gomez Lopez Hernandez.



Midge
Member
Female
56 years old
About Me
Older Mom of a beloved boy with RS.

NatesMom
Member
Male
23 years old

Patty
Member
Female

Sarah Golden
Member
Female

alison coe
Member
Female
46 years old
About Me
I am from manchester in the uk and have twins my daughter lillyjean was diagnosed at 20 weeks pregnant