Rhombencephalosynapsis & Gomez Lopez Hernandez

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Justin
Member
Male
46 years old

KariLyn
Member
Female
40 years old
About Me

My youngest son received his GLH diagnosis over six years ago when he was two. It has been really incredible to see this support grow on the internet.



Lachlans Mom
Member
Female
46 years old
About Me




Leanne
Member
Female
About Me


Liselot
Member
Female
38 years old
About Me




MRose
Member
Female

Margaret Lee
Administrator
Female
70 years old
About Me




Maria Scantlebury
Member
Female
31 years old
About Me
I'm 25 from the south west of the UK. My partner and I have a beautiful boy called Charlie :)

Marie
Member
Female
About Me

I am a paediatric physiotherapist and interested in learning more about rhombencephalosynapsis & Gomez Lopez Hernandez.



Midge
Member
Female
56 years old
About Me
Older Mom of a beloved boy with RS.

NatesMom
Member
Male
23 years old

Patty
Member
Female

Sarah Golden
Member
Female

amy r
Member
Female
39 years old
About Me

im a single mum of three gorgeous girls morgan 11,mackenzie who is 7,and my little lady paigewho has jst recentley been diagnosed with rhombencephalosynapsis .



athenamarie
Member
Female
About Me

22 years old, mother to daughter With rs and Hydrocephalus.



dltheisinger
Member
Female
About Me




grenouille13
Member
Female
54 years old

jesssmommy
Member
Female
About Me

i'm 25 and a mom to a almost 5year old boy with res, hydrocephalus, nf1, seizure, & spd.



kathy
Member
Female

[email protected]
Site Owner
About Me

I have a son born in 2007 who was diagnosed in 2009 with Rhombencephalosynapsis and later Gomez Lopez.  We have experienced (and still are) the ups and downs the condition brings.  We live in the south east of England.