Rhombencephalosynapsis & Gomez Lopez Hernandez

An excellent place for support from other families - to save on our web storage on this site please use this facebook page for general discussion.

Cerebello-Trigeminal Dermal Dysplasia a.k.a. Gomez-Lopez-Hernandez Syndrome

Information on the definition/diagnosis criteria for gomez lopez

What Is Chiari Malformation? a serious neurological disorder where the bottom part of the brain, the cerebellum, descends out of the skull and crowds the spinal cord, putting pressure on both the brain and spine and causing many symptoms.

Link to the website for this author showing the range of books she has written on the subject. I would start with the out of sync child which explains in detail what it is, and how it affects children with some practical advice for help.

The Out of Sync Child - List of the book which is available in other languages

a not-for-profit organisation, promoting education, good practice and research into the theory and practice of Ayres' Sensory Integration. We support those with sensory processing difficulties (also called sensory integration dysfunction or sensory processing disorder).

Another good website for information on SPD

Select a "skill defecit" select resources you have available and a list of OT exercises appear - great tool !!!

includes a video explaining it to children

An excellent utube link that describes sensory processing disorder for a child (or adult like me who prefers simple terms)

This book describes James' difficulties in processing sensory information correctly and shows some typical difficulties for children. The second half of the book is dedicated to providing advice and practical strategies. Other books are available on this site including spd from an adults point of view

We started using this a couple months before he was 5 and saw a dramatic improvement immediately in his balance. Now that we have done this every day 2x's a day for balance we are switching it up to new music geared towards hyperactivity . I hope it works as good as the ataxia sessions. We started today!

The Interactive Metronome (IM) is a research-based training program that helps children and adults overcome attention, memory, and coordination limitations. IM works for people of all ages who have a variety of conditions affecting their cognitive and physical abilities.

Offers free and independent advice on Local Education Authorities' legal duties to assess and provide for children with special educational needs.

Helpful Benefit In Virginia/other states may have similar waivers. Dig deep!

Mission Statement The Arc promotes and protects the human rights of people with intellectual and developmental disabilities and actively supports their full inclusion and participation in the community throughout their lifetimes.

TheraTogs Ultra Posture & Torso Alignment (PTA) System provides a gentle compression across the upper and lower trunk, giving significant and consistent proprioceptive and deep pressure input that calms behavior, improves focus, and enables increased function.

Polly Wogs: used for shoe inserts hyper mobility ankles/ support

Behavioural and physiological effects of deep pressure on children with autism: A pilot study evaluating the efficancy of grandin;s hug machine

A weighted vest is a useful occupational therapy tool. Weight can provide valuable sensory input and may be used to help children with sensory integration issues or autism spectrum disorders. These items are often quite expensive, but can be made at home with relative ease.

Custom Sensory products for kids

SPIO is a compression system designed to help children with special needs including cerebral palsy, autism, Down Syndrome, sensory processing disorders, and other neuro-muscular delays. SPIO is made of a patented Lycra fabric with a unique multi-directional stretch. SPIO offers a variety of comfortable and affordable styles that can be worn under clothing all day.

Protective helmet that worked well,was washable. A bit pricey over a regular soccer 90 helmet that can also be used but if you have insurance this one has been known to be covered with a doctor's script.

Out OT referred us to this site when our son had showed some signs of chewing on things (around age 5). The bracelet worked for him as a "calming" tool. On a side note I have an older ADHD child who benefited from a necklace and the pencil tubes as he chewed on everything and this seemed to "calm" in school and homework, tho you do have to put up with some saliva issues....

A larger stroller as they get older, a must as they tire out quicker then an average child and you can't carry. Base price $500 to $600 ebay has it a bit cheaper

another stroller a lot more expensive , but our insurance covered this one with a doctors script. No script or insurance it runs $2100

Fun drinking Honey bear cup

Flexi cup to assist drinking

Why crossing the mid-line is so important

Bi-lateral coordination

Practice following directional signals and moving to the beat.

great brain exercises for crossing the midline...start early!

Great idea for teaching your child to recognise when they need help/intervention