Please use this page to view and add links that are relevant to the condition. If you are unable to add link please email to me at [email protected] and I will add it on your behalf
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RS Facebook page
www.facebook.com/#!/groups/203184856368528/
An excellent place for support from other families - to save on our web storage on this site please use this facebook page for general discussion.
Posted May 6, 2012 at 2:50 AM
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rhombencephalosynapsis.blogspot.com/
Posted May 19, 2012 at 5:57 PM
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www.facebook.com/groups/112448538791527/
Cerebello-Trigeminal Dermal Dysplasia a.k.a. Gomez-Lopez-Hernandez Syndrome
Posted June 20, 2012 at 8:02 PM
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An easily missed diagnosis
www.sciencedirect.com/science/article/pii/S1769721208000219
Information on the definition/diagnosis criteria for gomez lopez
Posted May 14, 2012 at 7:30 AM
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www.conquerchiari.org/index.html
What Is Chiari Malformation? a serious neurological disorder where the bottom part of the brain, the cerebellum, descends out of the skull and crowds the spinal cord, putting pressure on both the brain and spine and causing many symptoms.
Posted June 16, 2013 at 3:32 AM
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The out of Sync Child
out-of-sync-child.com/
Link to the website for this author showing the range of books she has written on the subject. I would start with the out of sync child which explains in detail what it is, and how it affects children with some practical advice for help.
Posted February 19, 2013 at 1:35 PM
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Foreign Language Books
out-of-sync-child.com/carols-booksdvds/
The Out of Sync Child - List of the book which is available in other languages
Posted December 8, 2013 at 4:01 AM
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Sensory Integration Network
www.sensoryintegration.org.uk/
a not-for-profit organisation, promoting education, good practice and research into the theory and practice of Ayres' Sensory Integration. We support those with sensory processing difficulties (also called sensory integration dysfunction or sensory processing disorder).
Posted November 26, 2013 at 8:35 AM
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spd foundation
www.spdfoundation.net/contact.html
Another good website for information on SPD
Posted November 26, 2013 at 8:36 AM
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advice and support on sensory issues
sensoryprocessing.yolasite.com/
Posted October 9, 2014 at 4:09 PM
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More links and advice specific to spd
lemonlimeadventures.com/sensory-processing/
Posted October 11, 2014 at 6:52 AM
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Great OT exercise Ideas
www.otplan.com/default.aspx
Select a "skill defecit" select resources you have available and a list of OT exercises appear - great tool !!!
Posted October 14, 2014 at 5:00 AM
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info on auditory processing
lemonlimeadventures.com/auditory-system-sensory-processing-explained/
includes a video explaining it to children
Posted October 14, 2014 at 3:08 PM
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Description
www.youtube.com/watch?v=6O6Cm0WxEZA
An excellent utube link that describes sensory processing disorder for a child (or adult like me who prefers simple terms)
Posted May 14, 2012 at 7:33 AM
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Sensory Book for children and adults
www.thelocaltherapycompany.co.uk/products/15-james-has-sensory-processing-disorder.aspx
This book describes James' difficulties in processing sensory information correctly and shows some typical difficulties for children. The second half of the book is dedicated to providing advice and practical strategies. Other books are available on this site including spd from an adults point of view
Posted June 2, 2012 at 6:04 AM
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Therapeutic Listening
www.vitallinks.net/pages/About-Therapeutic-Listening.php
We started using this a couple months before he was 5 and saw a dramatic improvement immediately in his balance. Now that we have done this every day 2x's a day for balance we are switching it up to new music geared towards hyperactivity . I hope it works as good as the ataxia sessions. We started today!
Posted May 14, 2012 at 8:17 PM
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Interactive Metronome
https://www.interactivemetronome.com/
The Interactive Metronome (IM) is a research-based training program that helps children and adults overcome attention, memory, and coordination limitations. IM works for people of all ages who have a variety of conditions affecting their cognitive and physical abilities.
Posted December 8, 2013 at 3:43 AM
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IPSEA
www.ipsea.org.uk/
Offers free and independent advice on Local Education Authorities' legal duties to assess and provide for children with special educational needs.
Posted April 25, 2012 at 8:58 AM
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dmasva.dmas.virginia.gov/default.aspx
Helpful Benefit In Virginia/other states may have similar waivers. Dig deep!
Posted May 14, 2012 at 7:53 AM
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Disability Advocacy USA
www.thearc.org/who-we-are
Mission Statement The Arc promotes and protects the human rights of people with intellectual and developmental disabilities and actively supports their full inclusion and participation in the community throughout their lifetimes.
Posted December 8, 2013 at 3:33 AM
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Theratogs
www.medicaleshop.com/theratogs... (more)
TheraTogs Ultra Posture & Torso Alignment (PTA) System provides a gentle compression across the upper and lower trunk, giving significant and consistent proprioceptive and deep pressure input that calms behavior, improves focus, and enables increased function.
Posted May 14, 2012 at 7:57 AM
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Polly Wogs
www.monstermarketplace.com/childrens-orthotic-braces-and-shoe-inserts/pollywog-shoe-insert
Polly Wogs: used for shoe inserts hyper mobility ankles/ support
Posted May 14, 2012 at 7:58 AM
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Study of effects of weighted vests
ajot.aotapress.net/content/53/2/145.full.pdf+html
Behavioural and physiological effects of deep pressure on children with autism: A pilot study evaluating the efficancy of grandin;s hug machine
Posted May 14, 2012 at 7:23 AM
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How to Sew a Weighted Vest
.http://www.ehow.com/how_4795694_sew-weighted-vest.html
A weighted vest is a useful occupational therapy tool. Weight can provide valuable sensory input and may be used to help children with sensory integration issues or autism spectrum disorders. These items are often quite expensive, but can be made at home with relative ease.
Posted February 27, 2013 at 5:07 AM
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Squeezers - Compression Sheets
www.etsy.com/shop/skweezrs
Custom Sensory products for kids
Posted December 8, 2013 at 3:38 AM
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Compression Garments
www.spioworks.com/
SPIO is a compression system designed to help children with special needs including cerebral palsy, autism, Down Syndrome, sensory processing disorders, and other neuro-muscular delays. SPIO is made of a patented Lycra fabric with a unique multi-directional stretch. SPIO offers a variety of comfortable and affordable styles that can be worn under clothing all day.
Posted December 8, 2013 at 3:41 AM
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Protective Helmet
www.southwestmedical.com/products/Toppen-77-Soft-Protective-Helmet-15930.html
Protective helmet that worked well,was washable. A bit pricey over a regular soccer 90 helmet that can also be used but if you have insurance this one has been known to be covered with a doctor's script.
Posted May 14, 2012 at 7:59 AM
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Oral calming
www.nationalautismresources.com/chewable-jewelry.html
Out OT referred us to this site when our son had showed some signs of chewing on things (around age 5). The bracelet worked for him as a "calming" tool. On a side note I have an older ADHD child who benefited from a necklace and the pencil tubes as he chewed on everything and this seemed to "calm" in school and homework, tho you do have to put up with some saliva issues....
Posted May 14, 2012 at 8:00 PM
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stroller
www.especialneeds.com/maclaren... (more)
A larger stroller as they get older, a must as they tire out quicker then an average child and you can't carry. Base price $500 to $600 ebay has it a bit cheaper
Posted May 19, 2012 at 5:04 PM
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stroller
www.stealthproducts.com/catalog/lightning/
another stroller a lot more expensive , but our insurance covered this one with a doctors script. No script or insurance it runs $2100
Posted May 19, 2012 at 5:06 PM
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www.talkingchild.com/shop_HoneyBearCupwithStraw.aspx
Fun drinking Honey bear cup
Posted December 8, 2013 at 3:51 AM
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Blue Flexi Cut Nosey Cup
www.talkingchild.com/shop_LargeFlexiCutNoseyCupFeedingTherapy.aspx
Flexi cup to assist drinking
Posted December 8, 2013 at 3:54 AM
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www.ot-mom-learning-activities.com/crossing-the-midline.html
Why crossing the mid-line is so important
Posted May 14, 2012 at 7:41 PM
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www.ot-mom-learning-activities.com/bilateral-coordination.html
Bi-lateral coordination
Posted May 14, 2012 at 7:43 PM
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Rhythmic Motion - Online resource for pediatric occupational therapy, pediatric physical therapy and special needs
/www.yourtherapysource.com/rhythmic.html
Practice following directional signals and moving to the beat.
Posted February 27, 2013 at 5:11 AM
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Brain exercises
drjean.org/html/monthly_act/act_2006/03_Mar/pg04.html
great brain exercises for crossing the midline...start early!
Posted May 14, 2012 at 7:48 PM
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Visual Perception & Learning Skills
www.visionandlearning.org/visualperception08.html
Posted January 17, 2013 at 6:08 PM
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Self Regulation help
fabstrategies.org/2014/08/19/school-sensory-modulation-strategies/
Great idea for teaching your child to recognise when they need help/intervention
Posted September 28, 2014 at 12:29 PM
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